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NeuroEndocrine Cancer Australia
NeuroEndocrine Cancer Australia
is the only not for profit medical charity providing support to Australians living with neuroendocrine cancers. NeuroEndocrine Cancer Australia raise awareness and understanding of neuroendocrine tumours (NETs), both within the medical profession and the wider Australian public.
Vision and mission
Their purpose is to achieve earlier diagnosis and ultimately find a cure. Their mission is governed by five pillars: patient support, education, research, awareness and advocacy.
These pillars have been created to give neuroendocrine cancer patients, their families and friends, a voice in the community, access to the care and treatment that they deserve, raise awareness and knowledge of NETs within the medical community and general public; and encourage and support Australian research in the area of neuroendocrine cancers.
How NeuroEndocrine Cancer Australia can help
They provide the following patient & HCP services and resources:
Patient services:
- NET Nurse – email or phone
- NET Dietitian – online or phone consults
- NET Counsellor – online or phone consults
- Support Groups – monthly online via Zoom
- Support Groups – face-to-face
- Advocacy
- Facebook Support Groups
- 1:1 Peer Support (Cancer Connect)
- Information sessions
- Clinical Trials listing
- NET Library – publication / articles / videos
Patient resources:
- Fact Sheets
- Nation NET service listing
- Information Booklets
- PLANET App – PROMs
- Treatment & Wellness Care Plan
- Webinars/forums
- Monthly newsletter
- Living with NETs online education program
HCP services:
- Professional accredited Learning
- PLANET Registry
- Clinical In-services
- Patient referrals
- Information booklets
- Monthly newsletter
Information lines / help lines
- Call 1300 287 363 Monday to Friday 9am to 5pm AEST
Programs, apps and tools
- PLANET Registry App A free app is available when you are recruited into the Registry which enables recording of Quality-of-Life scores, performance status, Bristol Stool Scale and vitals (Height, weight and BMI)